第二次化療後第一日覆診 The first medical appointment after the 2nd Injection

今日又到醫院覆診, 主要是看一下白血球情況, 及初打VP16之後的反應,心中等待驗血報告, 一邊祈禱不要再加白血球針。報告出了, 白血球居然有40。於是醫生通知本來剩下兩枝針不用打。但因為了觀察情況, 下星期要再回去2天，目的是確實白血球穩定。

今天拆埋導管口的線, 雖然都痛, 但都順利, 拆完, 心口都沒有扯著的感覺。

Today, I need to take the blood test to check my white blood cell count and the situation after the 2nd injection with VP 16 added this time. While waiting for the report, I pray for God that please don't give me any more injection as there are 2 more on my schedule. Finally, the doctor comes with the report and it had 40. So the doctor stop the injection. Thanks God. But in order to keep tight supervision on my situation and white blood cell count after stopping the injection, I need to admit to the hospital for two days next week.

Besides, the stitches of my lumen has removed today. Although a bit pain, but everything goes fine. And I feel comfortable.

Leaving hospital 離開醫院

終於完了, 辛苦了家人, 特別是我老伴, 每天走來走去, 公司事務繁忙。可是今天又是香港最凍的一天, 4度, 唔係呀。不過, 只要回家, 什麼都OK.

Finally finished. I am sorry that my family are disturbed, especially my husband. He is busy in office and need to rush to hospital to buy me dinner.

Today, I can go back home. But it is also the coldest in Hong Kong, 4 degree. Now, I don't want anything but go back home.

新房客 New Room mate

當印印走後, 換了另一個太太, 佢早2日還在ICU, 她雖證實不是癌症,但口腔牙肉全發炎, 她已於當晚入住時, 沒有戴口罩, 我為了保護自己, 已戴,但整個晚上, 不知是印印,定新太太令我喉嚨乾, 又辛苦。越來越唔明, 醫院的守則, 我是來落藥, 一向情況好好, 為何不可以給我安心落藥走, 而要讓我冒險。

A new lady comes but she was at the ICU 2 days ago. She is confirmed not having cancer but her mouth had serious inflammation with sores. However, she did not wear mask the whole night. I had to protect myself so I have mine. I cannot sleep well that night because it is really uncomfortable to wear mask to sleep. I have no idea why the hospital handle about case like this. They prefer to put me under that threat. Is it too risky for me? 

第二至四晚威爾斯 The 2nd - 4th Night

第一晚已不好過, 要抽住藥架, 又要抆電製, 又要插電製, 個廁所感應器又過敏, 未坐低已沖水。瞓得好差。

但旁邊的印印, 即使姑娘不準佢落床, 佢照落, 佢每次去廁所, 令我壓力加重, 又怕佢有事, 又怕佢有事時整到我。

但又有事發生, 聽到印印傷風同咳, 但每朝醫生問佢, 佢又唔講。終於有天, 佢發燒, 但醫院即時沒有調走印印。於是我忍不住同姑娘講, 佢有咳, 有痰, 有傷風。姑娘即時問佢鼻涕顏色, 我聽到話黃色, 即時心實一實, 唔係呀, 我而家咁弱, 旁邊有事仲唔轉走佢 ? 最後, 佢都留多了一晚, 直至報告證明佢有副流感,才調到獨立房。姑娘入黎仲要同我講, 你都要帶口罩保護自己, 唔係呀, 醫院唔係要安排好的嗎? 只要發燒, 都要隔離一下先啦。

今天好朋友探我, 又帶了其他朋友的書、頭巾給我。

It is not an easy night. I need to unplug the electricity supply and plug it back when I go to toilet. The sensor of the flush is really annoying as it is so sensitive.

The Indonesia room mate does not listen to the nurse. She keeps getting off her bed and that makes me worry. I don't know how to handle her if she faint again and I am worrying that if she fells, she may pulls off my stuff.

Then, something happened. She had fever. But she never tells her doctor about her running nose and cough. So I tell the nurse and she tells the nurse that her spit is yellow. I know that she is not ok. But they did not move her out under the report proved that she had flu. I am wondering why they do not move her out once she had fever. It is really dangerous that they also had to protect me.

I have a visitor today. She brings also the books and the scarf from my friends.

威爾斯-驚險的第一天 The first day @PWH

到了醫院，驚喜的是住隔離2人病房19床，有獨立廁所。但失望的是標靶要等到黃昏6點先開始，0800至落藥只是等藥房配藥，另外化療藥直至9點才開始，4天的藥，好大可能要住多一晚，十萬個不願意。

不只這個小風波，還有的是居然還要我打豆，有兩條喉都唔夠，仲要打豆。本身就係因為打唔到才要裝這條喉，我堅決反對之下，最後冇打。當醫生都接納唔打，居然十分鐘後打豆員入黎話要打三個豆，一粒都唔打，打三個，真係有病。最突然的是房沖完涼，出黎時同我講佢暈，我立即㩒姑娘鐘，一個姑娘入黎，我同佢講話同房沖完涼覺暈，姑娘接扶佢，就係個分鐘，同房暈倒，姑娘即叫門口姐姐撐扶，之後再有2個護士入黎，4個合力抬佢上床。但她整個人沒有力，似失去知覺，情況都幾恐怖，但好彩佢一陣有返知覺。

但係最後，要黃昏6時後才開始打標靶藥, 晚上9時才開始化療, 亦因為延遲, 無奈地要住多一晚醫院。

Arrive the hospital at 0800. It js a surprise that I am staying in a room of 2 with independent washroom and shower.

However, I need to wait until 6pm to start my injection.

Secondly, they need to set drip on my hand as they said my two lumen is not enough to use. How ridiculous, if the person does not have lumen, they need to have 3 needles on his hand? I insist not to have any drip on my hand. More stupid, they send someone to ask me have 3 drips on my hand.
 Lastly, one thing shocked me. My roommate feels dizzy after she takes a bath. I press the nurse alarm and a nurse comes in. I tell her that my roommate feel dizzy. She holds her arm ad wants to bring her back to her ed. But suddenly my roommate loses her consciousness. Then the nurse call the workman outside the ward and help. Then two more nurses come and put her on her bad. After a while, she regain her consciousness and fine. The atmosphere is so tense.

However, I need to wait until 6pm for the first injection. And because of the delay injection, I have to accept staying one more night. 

白血球達標+剃頭儀式 white blood cell count pass + head shaving

今日0800返醫院驗血, 13達標, 醫生即要求下午入院,但我冇任何準備, 明早0745準時再入院。
明天即開始第二次化療。

下午回家途中, 因碰髮甩得太厲害, 係毛巾,枕頭,衫都是,所以決定剃光頭, 就係最近QB HOUSE攪掂。

現只求明天一切順利。

Today, arrive the hospital at 0800. It is glad to hear that my white blood cell count is 13 and reach the standard requirement for the 2nd injection. The doctor ask me to stay today but I reject as I do not have any preparation. So I will go to hospital tomorrow at 745.

On the way home, I went to QB House to shave my head as my hair is running off my head and mess up every where, towers, pillow, shirts.

I pray for my Lord and hope everything going smooth.

《暗黑破壞神III》周末 Diablo III Weekend

今個周末, 因為精神好, 又回覆胃口, 加上《暗黑破壞神III》出新野, 一家四口決定打機, 非常開心。

I am in good condition and appetite this weekend. And Diablo III has launched a new patch. So our family decided to have a wonderful family time. We are having fun.  

終於有得瞓 Sleep Finally

昨晚終於一覺瞓天光, 但瞓得太多, 反而有點頭痛. 下午再食藥, 都要瞓2個鐘, 一醒已夠鐘煮飯. 但冇咳咁辛苦, 已非常感恩.

I finally slept the whole night. But sleeping too much makes me headache. After taking the afternoon medicine, I sleep for another 2 hours. I wake up at 6 and start cooking. However, thanks God for making me less cough and I feel much better.

恐怖的晚上 A terrible night

昨晚只睡2小時, 還要坐著才能睡, 所以決定今早去馬醫生度睇一下, 老公見我咳成咁, 即使白血球低, 都要去睇。細仔陪我到診所, 姑娘見到我個樣都問侯我, 仲叫我唔好担心。馬醫生好細心問我除了咳還有什麼, 一切各樣都解釋給我聽。即使我轉到威爾斯睇,醫生同姑娘都會問一下我的情況, 每次離開診所, 他們都會同你講, 加油呀, Vera. 真窩心, 這樣有醫德的醫生, 加上細心和關心的姑娘, 真是我的福氣。

食了一次藥, 咳明顯少了, 下午睡了2小時, 非常舒服。希望今晚可以有個甜睡。

Last night, I could only sleep for 2 hours in the sitting posture. So I decide to see Dr. Ma. Although I am now with a low White Blood Cell count, my husband agree as he finds me cough seriously. My younger son accompany me to the clinic. The nurse see me and find my tired face. They tell me not to worry and see what Dr. Ma can help.  Dr Ma asks me all the details and explain all my questions. He is really a good doctor. Although I change to Prince Wales Hospital for the following treatment, Dr. Ma and his nurses will keep contact me for my status and giving advice for any questions. Every time when I leave the clinic, they will encourage me "add oil, Vera". How sweet and warm they are.

After taking the medicine, cough obviously better. I can sleep well for 2 hours this afternoon. And hopefully I can have a sweet dream tonight.  

第三針 The Third Injection

 昨天打了第三針, 真係徹底崩潰, 連Blog都寫唔到。咳到嘔,夜晚瞓唔到, 瞓得2個鐘, 人已經好攰, 周身痛, 仲要瞓唔到, 真辛苦。最唔開心, 開始甩頭髮, 仲好多個隻。

I collapsed finally after the third injection. I even cannot write blog. I had a very bad cough and cannot sleep at night. I sleep for two hours only. While feeling exhausted and pain all through the body, fail to sleep is really a punishment. By the way, I feel sad because my hair come off.

白血球針的厲害 The effect of the Filgrastm(Nivestim)Prefilled Syringe

昨天第一針白血球,晚上以 為昨天係醫院先覺得攰, 後來, 右肩肌肉也酸起來,搽了梁華, 便睡著了。但今天整個人都好攰, 坐都要挨著, 整個人的肌肉都是酸軟的, 胃口有不太好, 有些作悶.估唔到係呢枝針玩起我。剛晚飯前打完第二枝，真的軟化了，整個人由頭到腳都痛，冇晒精神，仲要咳。希望明天第三針後，不會再差。並日後回復精神同胃口。


After the injection yesterday, I was tired last night. And the muscle was so painful. But after putting some ointment, I could sleep at last. But today, terribly tired.I even do not want to sit on the sofa. I do not want to eat much and feeling frustrated. I underestimated this syringe. I have the 2nd injection before dinner. It is really terrible. The pain is from head to toe. And the coughing makes me feeling bad. Hope it would worser after the 3rd injection. Pray or the worse situation would disappear the day after.

第一個拆線日 First Stitch take out Day

今天0800到醫院,除了拆第一個針口的線外, 還驗白血球等等其仔指數,如果太低,要打白血球針。拆線完全唔痛,而指數除了白血球得1.3, 還有鈣低, 得1.99, 尿酸0.16,還可以。於是要打白血球針, 仲要自助式打3日和食鈣片. 醫生話如果下星期一再驗, 白血球回升, 冇咳, 便安排幾日後打第二次化療, 但要求留院4天, 藥拆開4天來打。又要住院了。

Today, we arrive the ward at 8am. Besides taking out the stitches, blood test is need and see whether I need the white blood cell injection. Finally, the stitches are taken without pain. The reading for white blood cell  is 1.3, Calcium 1.99(below standard), urine acid 0.16 (pass). So I need the injection for consecutively 3 days (self served) and have calcium pills. Doctor says I need to back on next Monday and have the blood test. If the white blood cell reading is better and I stop coughing, I will admit to hospital a few days later. He advises me to stay in the hospital for 4 days. He says the treatment will be injected in 4 days. Omg, I need to stay in the hospital again.

為予額外補充, 買了一箱營養奶, 好彩有cappuccino 味.

最弱的開始 The weakest day starts

根據醫生的叮囑, 今天是打針後開始最弱的一天, 白血球指數應該開始下降。今日真的開始有鼻水, 有點咳, 人比之前更攰, 全身都有點酸軟,所以今天特別小心, 一切食物都要煮透。

According to the doctor advice, today is the first day that the the decrease of the white blood cell counting. This morning, a little running nose, coughing, much more tired and feeling a bit sore of my body muscle. So today, food cooked thoroughly and prevent any infection.

午餐 : 炒油麵
晚餐 : 釀豆卜豆腐紹菜煲+揚州炒飯
Lunch : Fried noodles
Dinner : bean curd with pork filling, tofu and vegetable + fried rice

第一針後9日

身體感覺到疲倦，但狀態仍然好好。不過昨晚開始有些咳, 沒有痰,但喉嚨有少少癢。
早餐 - 牛奶麥皮
午餐 - 雞粥 + 炒烏冬
晚餐 - 蕃茄雞脾飯

Body feeling ok only a bit tired, coughing not too serious but itchy.
Breakfast - Hot milk cereal
Lunch - chicken congee + fried udon
Dinner - baked chicken rice with tomato sauce.