今次化療又再比上一次辛苦,口苦,作悶已經係未出院出現, 最慘是出現埋胃抽筋同痛到睡不了,典來典去,剛巧仲要房間冷氣太弱, 熱到同身汗, 未試過瞓到一個鐘。昨晚終於睡了連續四小時, 真開心。
呢次亦開始有人來探病,可以聚舊之餘一亦可以打發一下時間, 奈何, 精神亦未可以維持太久, 亦因此更攰。
但今次太辛苦， 根本整個極都似脫了殼，足足用了1星期才回復。
2016年4月9日 星期六
社康護士的煩惱 Troublesome Community Nursing Service
我一向認為社康護士會比醫院的較善良,因她們沒有那麼大壓力,點知我遇到的都是好差。
當初十一月手術做了導管之後, 社康護士不停致電問幾時家訪。奈何當時日日進出醫院同私家醫生, 暫時未有需要,所以決定通知需要時再致電,免得好們每次等我回覆。但其實通知好們取消都不易,因為永遠你會聽到好們沒有MUTE電話, 就大叫邊個做火炭區架, 你會聽到好們大聲講大聲笑, 電話轉駁又轉駁,你不停講全名及地址, (係公眾地方時, 真係好煩及冇私隱),最後就話你知放咗假。負責放假都應有人跟架, 佢才非常不願意地窯底, 仲要話: 「你下次打黎,講個名同地址就得架啦。」我答佢:「我打黎時已咁講, 你既同事轉駁咗4次, 我每一次都要重覆。」呢次我都算啦.
今次, 因上星期五醫生中午通知我星期四入院, 而星期一不用到日間醫院,我便需要社康護士幫忙通導管,我知道即卞1300致電她們, 可惜只有留言。等到1600未見回覆,於時再打去, 對方聲稱沒有收過我留言, 比咗個人資料佢, 佢話要搵下我既資料, 才回覆我。過了30分鐘仍未收到任何回覆, 再打去, 已是留言。於是我即時同日間護理病房姑娘反應, 她們即時替我通及換駁頭。
星期六1530收到她們電話, 告訴我她們可以安排,但問我有沒有藥和針筒, 我即時呆了。她知道我第一次,應該不知道要預先準備什麼，但為何她昨天不告訴我?她昨天完全沒有回覆. 她還要說:「病房護士應該要告訴你。」我未收到你們作實星期一會到的電話, 怎會叫病房準備文件。我昨天下午一時致電, 不是應早點回覆我嗎? 如不是我4點打去, 你根本唔會理會。自己失職, ,不好好道歉, 還推責任給病房。這樣不是解決問題, 佢最後提議我,叫我星期一先到日間病房拎藥,再自購針筒,他們下午到家。如果我到病房, 我已可在病房沖喉,根本不用好們到訪。
這樣做,令我這個病人心痛, 社康護士不是幫人嗎?我夾在中間似皮球般踢黎踢去,十分難受。
當初十一月手術做了導管之後, 社康護士不停致電問幾時家訪。奈何當時日日進出醫院同私家醫生, 暫時未有需要,所以決定通知需要時再致電,免得好們每次等我回覆。但其實通知好們取消都不易,因為永遠你會聽到好們沒有MUTE電話, 就大叫邊個做火炭區架, 你會聽到好們大聲講大聲笑, 電話轉駁又轉駁,你不停講全名及地址, (係公眾地方時, 真係好煩及冇私隱),最後就話你知放咗假。負責放假都應有人跟架, 佢才非常不願意地窯底, 仲要話: 「你下次打黎,講個名同地址就得架啦。」我答佢:「我打黎時已咁講, 你既同事轉駁咗4次, 我每一次都要重覆。」呢次我都算啦.
今次, 因上星期五醫生中午通知我星期四入院, 而星期一不用到日間醫院,我便需要社康護士幫忙通導管,我知道即卞1300致電她們, 可惜只有留言。等到1600未見回覆,於時再打去, 對方聲稱沒有收過我留言, 比咗個人資料佢, 佢話要搵下我既資料, 才回覆我。過了30分鐘仍未收到任何回覆, 再打去, 已是留言。於是我即時同日間護理病房姑娘反應, 她們即時替我通及換駁頭。
星期六1530收到她們電話, 告訴我她們可以安排,但問我有沒有藥和針筒, 我即時呆了。她知道我第一次,應該不知道要預先準備什麼，但為何她昨天不告訴我?她昨天完全沒有回覆. 她還要說:「病房護士應該要告訴你。」我未收到你們作實星期一會到的電話, 怎會叫病房準備文件。我昨天下午一時致電, 不是應早點回覆我嗎? 如不是我4點打去, 你根本唔會理會。自己失職, ,不好好道歉, 還推責任給病房。這樣不是解決問題, 佢最後提議我,叫我星期一先到日間病房拎藥,再自購針筒,他們下午到家。如果我到病房, 我已可在病房沖喉,根本不用好們到訪。
這樣做,令我這個病人心痛, 社康護士不是幫人嗎?我夾在中間似皮球般踢黎踢去,十分難受。
2016年3月27日 星期日
副作用出現 Finally the side effect
首先抱歉沒有即時更新,因為今次化療的確比前辛苦, 除了身體的痛苦~作悶,背痛,超攰。最後都要補回。其實最好是可以係醫院打, 但未知醫院有沒有隔離病房, 唔方便帶部電腦去。
最近呢兩次都因肝酵素問題辰多住4天, 兩次療程都花我十天，真辛苦。
第一沒有熱騰騰的食品連暖都不算, 試問怎可以下肚, 尤其是連續打藥5天, 冷水不斷入心, 人都變得冷。
而今次, 還住著一個83歲的婆婆，她患血癌而擴散全身, 第一天見好已想死, 又問醫生有沒有安樂死, 丈夫又有外遇, 只有盡量同佢傾有興趣既野, 好教我煮餸, 姑娘叫佢唔好落地, 佢都堅持自己去洗手間, 還要開著門, 這超越我的底線,這亦使我兩天沒有好好睡過, 仲整到我胃痛。不過真的担心佢, 亦希望幫到佢。但我終於都叫醫生開安眠藥, 要睡一晚才舒緩胃痛。
This time really a hard time as the side effect are more serious than before. I have stomachache, back pain and super tired. On the other hand, as I may not arranged staying in an isolation room, it is not convenient to bring the laptop with me.
The 3rd and 4th treatment, my ALT reading is not ideal and made me stay in hospital for 4 more days. It is really bad as basic food is poor and cold. And I have the treatment injected for 5 continuous days, my body is cold and hot food would definitely better for me.
Also, I have a 83 years old lady stay with me this time. Her situation is not good as it is the final phrase. She is depressed and she always want to die. I talked to her for a few days on any topics she likes. And although the nurse asked her to stay on bed, she insist to go to washroom with the door open. It cross my bottom line and I tolerate it as I do want to protect her and offer help. But this made me fail to sleep well for 2 nights. And my stomach twisted finally. I need to doctor to offer me drug to sleep.
最近呢兩次都因肝酵素問題辰多住4天, 兩次療程都花我十天，真辛苦。
第一沒有熱騰騰的食品連暖都不算, 試問怎可以下肚, 尤其是連續打藥5天, 冷水不斷入心, 人都變得冷。
而今次, 還住著一個83歲的婆婆，她患血癌而擴散全身, 第一天見好已想死, 又問醫生有沒有安樂死, 丈夫又有外遇, 只有盡量同佢傾有興趣既野, 好教我煮餸, 姑娘叫佢唔好落地, 佢都堅持自己去洗手間, 還要開著門, 這超越我的底線,這亦使我兩天沒有好好睡過, 仲整到我胃痛。不過真的担心佢, 亦希望幫到佢。但我終於都叫醫生開安眠藥, 要睡一晚才舒緩胃痛。
This time really a hard time as the side effect are more serious than before. I have stomachache, back pain and super tired. On the other hand, as I may not arranged staying in an isolation room, it is not convenient to bring the laptop with me.
The 3rd and 4th treatment, my ALT reading is not ideal and made me stay in hospital for 4 more days. It is really bad as basic food is poor and cold. And I have the treatment injected for 5 continuous days, my body is cold and hot food would definitely better for me.
Also, I have a 83 years old lady stay with me this time. Her situation is not good as it is the final phrase. She is depressed and she always want to die. I talked to her for a few days on any topics she likes. And although the nurse asked her to stay on bed, she insist to go to washroom with the door open. It cross my bottom line and I tolerate it as I do want to protect her and offer help. But this made me fail to sleep well for 2 nights. And my stomach twisted finally. I need to doctor to offer me drug to sleep.
2016年3月23日 星期三
終於回落了
今日開心終於回落了，回到121， 即刻上病房，可惜今次又到大房，仲要經理有人離世，見到家屬傷心，真的很難過。
我希望今天切順利，快點有隔離房，快點完成第四次化療。
我希望今天切順利，快點有隔離房，快點完成第四次化療。
係第三日，下午突然流鼻水，晚上鼻水倒流，變喉嚨痛，醫生即安排抽鼻水化驗。好彩無事， 為安全才安排我到隔離病房。
ALT finally coming own to 121. The doctor immediately send me to the ward. But this time, I am staying in a room of 6 and experienced someone passed away. I feel sorry for her family.
The third day, suddenly caught a running nose in the afternoon. Then sore throat at night. So the doctor collect my nose 's snivel for testing. Fortunately, they do not find any virus. And I was moved to isolated room.
2016年3月18日 星期五
2016年3月13日 星期日
期待的明日子...不容易
每次當知道要做下一次化療, 心中都有種戰戰兢兢的感覺, 又希望快些進行,又怕有副作用, 好像現在手指頭麻,像針督督下, 連執筆, 打keybroad都會痛。另外又怕獨個留在醫院6天, 每天等著老公來, 老公亦是辛苦工作後趕著到醫院, 或兒子走出走送飯,見到都心痛。
每天望著自己光光頭, 有時都心酸, 點解會是我? 但停了一下, 我會同自己講, 不要消極, 我好彩,光咗頭都唔差呀! 好傻, 但我就是有這份傻.
下星期有可能進第四次,努力, 已行到一半了。
每天望著自己光光頭, 有時都心酸, 點解會是我? 但停了一下, 我會同自己講, 不要消極, 我好彩,光咗頭都唔差呀! 好傻, 但我就是有這份傻.
下星期有可能進第四次,努力, 已行到一半了。
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