今天覆診:
1. 等了足足3個半鐘, 醫生見我精神唔錯, 都冇咩CARE我講野, 整個會見約30分鐘, 他有29分鐘都是望住個MON,
不停打電腦, 最後, 明年1月再見, 咁問佢幾時再照PETSCAN,因為只有PETSCAN先確定我是否痊癒,佢話唔會咁密,
等1月覆診時先BOOK啦, 咁如有人問我好返未, 我只有答1月先知....
2. 我左手腕於半個月前, 即開始電療前有粒豆既野係皮下面, 而家個粒野已令我左手掌不能活動自如, 醫生寫了轉介紙比我睇骨科同物理治療...呢D就係傳統政府醫生, 病唔死都比佢激死
3.我醫生建議我打流感針, 寫紙比我去打, 但姑娘話我唔合付資格,雖然醫生話我係抵抗力低, 我唔合資格原因仲好笑, 唔夠65歲同唔係拎綜援....OMG(都唔知幾多人拎綜援, 國內大把錢.....)
What's on today?
1. After waiting for 3 and half hour, the doctor see me at last. For the 30 minutes conversation, he does not look at me at all. He spends 29 mins on the monitor and the keyboard. Maybe I am no longer sick and he merely spend any concern over me. When I ask him when would be the next petscan, he would prefer to talk on the next appointment on January 2017.
2. Regarding my left wrist, I am feeling bad and worse. I can hold thing or twist at certain angle. However, after he takes a really fast look at my x-ray, he refer me to the physio therapy and orthopedics department. I feel a bit disappointed with his altitude.
3. And another good doctor suggest me to take the Seasonal Influenza Vaccination. And she fills up the form. However, the nurse there rejects me as I am not a over 65 elderly nor a
Comprehensive Social Security Assistance (CSSA) Scheme Applicant. (I believe that some of the applicants are rich people in China.)
The Hong Kong Government is no longer serving the real Hong Kong people.
2016年11月28日 星期一
2016年11月15日 星期二
第9次電療 The 9th treatment
上星期五因為電療機壞了,所以要延多1 天, 23/11才完成, 剛是第二年的第一天, 希望亦是治療最後一天吧。
第六次開始, 除了攰之外, 還有頂心作悶的感覺。這一次比一次明顯, 今天做完電療, 已即有這種感覺。
The machine broke down last Friday and my last treatment day postponed one more day, 23/11. This day would be the 1st day of my second year of Lymphoma. And I hope that it would be last treatment day.
And since the 6th treatment, besides feeling fatigue, I feel discomfort in my stomach. This feeling become serious day by day. I can feel it today right after the treatment.
😣
第六次開始, 除了攰之外, 還有頂心作悶的感覺。這一次比一次明顯, 今天做完電療, 已即有這種感覺。
The machine broke down last Friday and my last treatment day postponed one more day, 23/11. This day would be the 1st day of my second year of Lymphoma. And I hope that it would be last treatment day.
And since the 6th treatment, besides feeling fatigue, I feel discomfort in my stomach. This feeling become serious day by day. I can feel it today right after the treatment.
😣
2016年11月7日 星期一
第4次電療 The 4th treatment
多謝天父既保守, 第4次電療都未見有大唔舒服。只係頂胃感覺稍為明顯,攰同有輕微背痛。
上星期五因左手腕有粒白粒, 好似粒藥丸咁, 按有痛, 同郁手指公時有唔舒服, 醫生寫紙比我照x光, 希望冇事啦。
繼續努力。
Thank you very much for my Lord taking care of me during the radiation therapy. I feel great although I have received the 4th treatment. Besides tired, only a bit pain in stomach & back.
Last Friday, a small pea sized was find on my left wrist. I feel pain only I pressed on it. And it seems affecting while I am swinging my thumb. Dr. Cheung refers me to take a x-ray and hope that it would be nothing serious.
Keep going.
上星期五因左手腕有粒白粒, 好似粒藥丸咁, 按有痛, 同郁手指公時有唔舒服, 醫生寫紙比我照x光, 希望冇事啦。
繼續努力。
Thank you very much for my Lord taking care of me during the radiation therapy. I feel great although I have received the 4th treatment. Besides tired, only a bit pain in stomach & back.
Last Friday, a small pea sized was find on my left wrist. I feel pain only I pressed on it. And it seems affecting while I am swinging my thumb. Dr. Cheung refers me to take a x-ray and hope that it would be nothing serious.
Keep going.
2016年11月2日 星期三
2016年11月1日 星期二
2016年10月31日 星期一
2016年10月25日 星期二
冇booking?
24/10睇報告, 醫生話腫瘤科預31/10見, 但到今天4點半都未有電話, 打去問, 話下星期唔見有我個名, 唔係呀, 又拖?????? 10月中變10月尾?留個電話等明天姑娘覆。
25/10,如我所料, 下午都未有人霞, 再打去, hotline 答我姑娘知道, 但未有日期, 我個心又緊張起黎,怕好似之前既亞MAY咁, 人為遲咗治療, 同HOTLINE講要求直接同姑娘對話, 否則即刻到腫瘤科面質。
最初有個我估係Clerical同我講,
c: 當時同醫生講既係31號, 但唔係一定
v: 如果有改, 你地唔係應電話通知咩, 我9 月尾你地話會打比我個期, 我見醫生話睇埋
petscan 個report, 我唔追等到10月尾, 等咗1個月啦, 而定一句話醫生未睇,咁佢又幾時睇呢,
人命黎架,醫生唔係應救人先既咩?當日佢話次數可會因報告加多減少, 但開始日期唔改,
即使31號, 都遲咗半個月
c: 唔知架, 佢可能開會有時唔得閒睇, 要佢簽名先作實
v: 呢間醫院個個醫生都超忙, 你咁講即係我既醫生好得閒先會理我啦 (我見個度有D人行黎
行去傾計, 真係忙到咁?咁病人死因要多個原因, 醫生太忙, 疏忽照顧身亡)
c:咁我搵個姑娘轉頭覆你
中間對話仲有個音既問題11月1同11月7, 對方堅持冇講7號, 可能有D國內人既音, 呢D少事, 算!
~~個一刻, 心中忐忑不安, 即係點, 7 月頭停化療, 11月未有任何動作, 分分鐘返發....
1個鐘後有位李姑娘覆, 話欠醫生簽名, 原則上11月1 日做最後準備, 11月2 日開始電療如果星期一都冇電話, 竟1/11 10點見啦。
Finally, finally.....
25/10,如我所料, 下午都未有人霞, 再打去, hotline 答我姑娘知道, 但未有日期, 我個心又緊張起黎,怕好似之前既亞MAY咁, 人為遲咗治療, 同HOTLINE講要求直接同姑娘對話, 否則即刻到腫瘤科面質。
最初有個我估係Clerical同我講,
c: 當時同醫生講既係31號, 但唔係一定
v: 如果有改, 你地唔係應電話通知咩, 我9 月尾你地話會打比我個期, 我見醫生話睇埋
petscan 個report, 我唔追等到10月尾, 等咗1個月啦, 而定一句話醫生未睇,咁佢又幾時睇呢,
人命黎架,醫生唔係應救人先既咩?當日佢話次數可會因報告加多減少, 但開始日期唔改,
即使31號, 都遲咗半個月
c: 唔知架, 佢可能開會有時唔得閒睇, 要佢簽名先作實
v: 呢間醫院個個醫生都超忙, 你咁講即係我既醫生好得閒先會理我啦 (我見個度有D人行黎
行去傾計, 真係忙到咁?咁病人死因要多個原因, 醫生太忙, 疏忽照顧身亡)
c:咁我搵個姑娘轉頭覆你
中間對話仲有個音既問題11月1同11月7, 對方堅持冇講7號, 可能有D國內人既音, 呢D少事, 算!
~~個一刻, 心中忐忑不安, 即係點, 7 月頭停化療, 11月未有任何動作, 分分鐘返發....
1個鐘後有位李姑娘覆, 話欠醫生簽名, 原則上11月1 日做最後準備, 11月2 日開始電療如果星期一都冇電話, 竟1/11 10點見啦。
Finally, finally.....
2016年10月24日 星期一
打風, 22/10-->24/10
本來22/10取報告, 21號晚都瞓我唔好,仲要打風, 拖多2日, 24號先睇報告。
報告講, 個癌細胞Size冇大冇細, 光度由3.4暗咗少少變做3, 於是電療係必行,趕盡殺絕。
另於胸腺有少少光, 有可能係化療過後,開始回復生長, 但都係要睇住啦。
甲狀腺有光, 呢個醫生建議先照超聲波, 再抽組織。但都係電療先行。一聽到要抽組織, 心都打個冷震。
仲有一個tiny腎石, 醫生話報告size都冇list, 可能好細, 分分鐘小便時排走，如有腰痛或者小便痛, 就要睇醫生。
開心一半一半啦。準備心情, 開始電療。
不過, 即日下午即拔除相連表近1年既HICKMAN, 又開心又唔捨得, 過程醫生非常細心,冇咗條喉, 舒服到難以形容。
報告講, 個癌細胞Size冇大冇細, 光度由3.4暗咗少少變做3, 於是電療係必行,趕盡殺絕。
另於胸腺有少少光, 有可能係化療過後,開始回復生長, 但都係要睇住啦。
甲狀腺有光, 呢個醫生建議先照超聲波, 再抽組織。但都係電療先行。一聽到要抽組織, 心都打個冷震。
仲有一個tiny腎石, 醫生話報告size都冇list, 可能好細, 分分鐘小便時排走，如有腰痛或者小便痛, 就要睇醫生。
開心一半一半啦。準備心情, 開始電療。
不過, 即日下午即拔除相連表近1年既HICKMAN, 又開心又唔捨得, 過程醫生非常細心,冇咗條喉, 舒服到難以形容。
2016年10月19日 星期三
19/10 Petscan
今次因為改咗日期, 唔記得UPDATE埋個時間, 以為1145, 點知不來係10點半, 醫院見人未到打黎, 我仲未換好衫, 咁即刻嗱嗱聲出門口, 好彩好快有的士, 但塞車又遲咗一陣, 11點50分到。去到, 佢同我講, 因為我遲咗, 要比早到既人先, 我即刻問, 我上次早咗, 有個遲咗1個鐘, 你又唔比我早?因為第一次那人遲1個鐘, 我本身0930要等到1130先有得做, 整到我3點先食野,所以我
今次唔肯。
今次本身2點通知可以走, 換好衫,等到2點半都未有姑娘幫我拆豆, 入去睇原本佢同個病人傾計, 而該病人就係2點鐘已入去, 終於2點9走得, 唸住去旺角搵老公一齊走, 落大雨, 仲要澗水, 正為冇整濕對鞋開心, 一架私家車車過水氹, 濕晒。
今次唔肯。
今次本身2點通知可以走, 換好衫,等到2點半都未有姑娘幫我拆豆, 入去睇原本佢同個病人傾計, 而該病人就係2點鐘已入去, 終於2點9走得, 唸住去旺角搵老公一齊走, 落大雨, 仲要澗水, 正為冇整濕對鞋開心, 一架私家車車過水氹, 濕晒。
2016年9月28日 星期三
28/9 @ 腫瘤科/電療
由於安排0800做CT, 昨晚零晨反不可進食, 黠知等到10點都未有人入房, 只見房間工作人員行行笑笑, 10點半,正式入第一個, 我要等到12點半先入, 入到去, 瞓係上次個半身模, 其餘上半身瞓係張凍到飛起既鋼板上面, 雞皮都起晒, 佢地用MARKER你我身上畫線, 最後仲搵1個紋身咁點咗4點。仲要聽到個工作人員講, 今日上午一定超時,我心唸, 你地準時0800開始, 就唔會超時啦。
2016年9月26日 星期一
26/9 @ 腫瘤科/電療
26/9 @ 腫瘤科/電療
做完心電圖,再去見醫生, 知道提早10月中可PETSCAN, 醫生便開始啟動電療程序, 28/9做電腦掃瞄。見完醫生後去另一個房做上半身模型,電療時需要用的, 好大膠味, 不過D泥好暖, 瞓時熱熱地, 好舒服。
做完心電圖,再去見醫生, 知道提早10月中可PETSCAN, 醫生便開始啟動電療程序, 28/9做電腦掃瞄。見完醫生後去另一個房做上半身模型,電療時需要用的, 好大膠味, 不過D泥好暖, 瞓時熱熱地, 好舒服。
2016年9月22日 星期四
2016年9月15日 星期四
2016年9月2日 星期五
照腸colonscopy
上一次是6年前照,
第一天痾到傻,第二天餓到死。今次,早3日要食低纖餐,冇菜冇水果,但每天那2000ml既瀉水,難飲到呢,每15分鐘250ml,每天1000ml,第
一天是晚餐後飲,整晚冇痾, 第二日就痾到, 水箱都未回水已再入廁所, 仲要飲埋另外1000ml, 8點幾痾到11點, 瞓咗係床瞓著咗,
1點半起身,準時2點半去見醫生。3點半準時到醫院,4點半開始做, 整個過程都於後期醒醒地, 後黎姑娘話我知,
我D腸好難照,要轉黎轉去先照得晒。
於9月2 日知道,那3粒只是普通瘜肉。感恩。
於9月2 日知道,那3粒只是普通瘜肉。感恩。
2016年8月5日 星期五
結果出了 the petscan report
早上9時到達3K病房,等了4個鐘, 醫生終於話比我知, 個瘤SIZE無大無細,但光度由1.9變到3.4, 另腸見有光, 都有13點幾.個心停一下, 即係差咗。個一刻, 將心裏一切希望破滅,並點起了無名火, 上星期四照完, 星期五未有報告, 要等一星期後先話我知, 唔係報告唔得會叫我早D返醫院,睇下點跟進既咩?即使未有時間睇, 至少即日都話我知先, 唔駛白白晒咗半日。因為腸有光, 會建議照腸, 但政府排要3個月, (唔知點解我呢D唔叫急,唔可以安排我快D),要我自費會快D, 都要2個星期。我佢地比晒出院文件我, 已經3點, 即刻拎報告去搵馬醫生問意見。雖然冇係馬醫生度做化療, 馬醫生都會比些建議,腸要照確定,雖然佢唔認為是新CANCER, 如中大私家腸科鄧醫生認為,腸癌極少在短短幾個月形成,但只担心是淋巴癌細胞走到腸。
聽完定了一定, 但奈何我家費用太貴,只有繼續倚靠政府醫院。當然, 這是最難過的周末。
Arrived Ward 3K at 9 am and waited for 4 hours until the Doctor inform us about the petscan report. The size are more or less the same but it was brighter than the last report from 1.9 to 3.4. Besides, a new spot was found at the colon with the reading around 13. This would be a bad report and how come they did not call me up and asked me to come early for further discussion? And at least they would tell me earlier today so that I can go for second opinion this afternoon. They suggest me to take a colonoscopy to clarify that there is no cancer there. And they told us that it needs to wait for 3 months in public hospital. (I don't know why they could not treat me as urgent case) So I need to pay by myself for earlier treatment. They gave me the discharge summary and the documents at around 3 pm. So I rushed to Dr. Ma for second opinion as it was Saturday the next day. Dr. Ma thought that there should not be cancer in the colon as it was common to find reading in colon. However, to play safe, a colonoscopy would definitely a sounding method to prove. He also had the same point of view as Dr. Tang, the senior Dr. at the Chinese University that cancer would not appear in a few months. But they concern was whether the cancer cell fleet from lymph to there.
After consultation at Dr. Ma, I felt a bit relieve. However, it would be the worst weekend I ever had.
聽完定了一定, 但奈何我家費用太貴,只有繼續倚靠政府醫院。當然, 這是最難過的周末。
Arrived Ward 3K at 9 am and waited for 4 hours until the Doctor inform us about the petscan report. The size are more or less the same but it was brighter than the last report from 1.9 to 3.4. Besides, a new spot was found at the colon with the reading around 13. This would be a bad report and how come they did not call me up and asked me to come early for further discussion? And at least they would tell me earlier today so that I can go for second opinion this afternoon. They suggest me to take a colonoscopy to clarify that there is no cancer there. And they told us that it needs to wait for 3 months in public hospital. (I don't know why they could not treat me as urgent case) So I need to pay by myself for earlier treatment. They gave me the discharge summary and the documents at around 3 pm. So I rushed to Dr. Ma for second opinion as it was Saturday the next day. Dr. Ma thought that there should not be cancer in the colon as it was common to find reading in colon. However, to play safe, a colonoscopy would definitely a sounding method to prove. He also had the same point of view as Dr. Tang, the senior Dr. at the Chinese University that cancer would not appear in a few months. But they concern was whether the cancer cell fleet from lymph to there.
After consultation at Dr. Ma, I felt a bit relieve. However, it would be the worst weekend I ever had.
2016年7月18日 星期一
等待的苦...Bad waiting
等待檢查, 等待報告,希望及害怕都有,信心是有, 但都怕有變化,再也受不了。
It is really a tough and hard feeling while waiting for the Petscan and the report. Although I believe that I can win, there are still uncertainty. Hope my Lord give me faith to overcome the worries.
It is really a tough and hard feeling while waiting for the Petscan and the report. Although I believe that I can win, there are still uncertainty. Hope my Lord give me faith to overcome the worries.
2016年7月2日 星期六
2016年6月8日 星期三
第七次化療
第七次了,又住大房, 可能知道就快完成, 心中沒有那麼火, 只是靜靜地等。但估不到, 牙醫的事令我發火,但同事另一件事令我靜下來。
第一日, 因下午入醫,唯有homeleave回家,第二天先見牙醫. 早上standby到10點, 等了合幾鐘, 到我時, 居然話要開刀做手術脫智慧牙, 心中雖然奇怪, 但相信醫生的決定, 更不想因牙影響化療進度. 下午等了一輪, 3點推到, 打了4下麻醉藥, 又等個幾鐘, 藥力都開始變弱時, 推入房, 一位中級醫生入黎, 再加2針麻醉針, 睇了我的片, 又再叫一位高級醫生入黎, 之後通知我不可做手術. 不可以?我2天的時間?白捱的6針?他不但沒有任何歉意, 一開口就chanllenge我為什麼要求脫智慧牙, 什麼時候化療, 一大堆想卸下責任的問題. 我當時還被手術布蓋著眼睛的。我要求坐起來面對面談,並重新講述整個過程.
這位牙醫有多個錯處
1. 應在房外與其他2位醫生商量, 了解先是誰的決定,而不是直接"兇"病人, 及後於病人旁邊責備醫生
2. 他以"如果你是我親戚, 我不會建議你做", 這是醫書那一版?
3. 他說是否脫牙由我決定, 我牙痛, 告訴我的醫生, 醫生要牙醫比second opinion, 牙醫卻要我決定, 牙醫不是要以專業人士的給專業意見嗎? 對化療有問題, 不是直接聯絡我醫生直接得多, 病人是被醫的那一位, 而不是吩咐醫生怎樣醫.4. 不是正常病人, 化療中的病人有很多限制, 不應由一個新的牙醫處理, 即使也要多一位資深的旁診, 莫非這位醫生以為出了事, 一推就事不關己?新醫生早生完診, 都應主動問一下
我慶幸的, 是我血液科的醫生, 正在同我一同作戰的醫生, 不似他們那樣, 我今次如真的成功, 全賴他們。
2016年6月7日 星期二
An urging for death
This is my first time to see a dying patient who wants to die so much. Her family had already accept this is the fact. Her situation was so worse but her husband would stay overnight at the hospital and daughter-in-law would take care of her day time. They will help her scratching, dripping water, placing the fan, swipe the sweat etc. daily without complaints. They do have a very strong bond of family.
After chat with her family, realize that she did not have one on her side. Those family members are her husband family. I think that it is God work to let her meet her husband and stay with a very good family which gave her warm and care.
Finally, she passed away and finish the 3 and a half months on the bed and the 15 months war with cancer.
Hope that she is happy in Heaven now.
After chat with her family, realize that she did not have one on her side. Those family members are her husband family. I think that it is God work to let her meet her husband and stay with a very good family which gave her warm and care.
Finally, she passed away and finish the 3 and a half months on the bed and the 15 months war with cancer.
Hope that she is happy in Heaven now.
2016年5月9日 星期一
2016年5月5日 星期四
正電子掃描結果 petscan result
5月4日照完，5月5日便入日間護理中心睇報告，知道惡性瘤細了，由拳頭般大變得手指頭般，之前光的位置也變得暗了，即變得不活躍了。真開心。
After the petscan on May 4, I go to the hospital to wait for my report the next day. I am happy to know that the tumor's size is minimize and it become inactive while comparing the first petscan on Dec 22, 2015. It proved that the treatment is effective.
After the petscan on May 4, I go to the hospital to wait for my report the next day. I am happy to know that the tumor's size is minimize and it become inactive while comparing the first petscan on Dec 22, 2015. It proved that the treatment is effective.
2016年5月4日 星期三
特別的生日A very special birthday
當知道生日當天做的petscan,心中感到好笑，生日咁好節目！
一早9點3到了QE， 仲要空肚到3點，不過好彩打豆順利。
完了後，晚上到九龍香格里拉食自助餐。
一早9點3到了QE， 仲要空肚到3點，不過好彩打豆順利。
完了後，晚上到九龍香格里拉食自助餐。
2016年4月18日 星期一
2016年4月9日 星期六
社康護士的煩惱 Troublesome Community Nursing Service
我一向認為社康護士會比醫院的較善良,因她們沒有那麼大壓力,點知我遇到的都是好差。
當初十一月手術做了導管之後, 社康護士不停致電問幾時家訪。奈何當時日日進出醫院同私家醫生, 暫時未有需要,所以決定通知需要時再致電,免得好們每次等我回覆。但其實通知好們取消都不易,因為永遠你會聽到好們沒有MUTE電話, 就大叫邊個做火炭區架, 你會聽到好們大聲講大聲笑, 電話轉駁又轉駁,你不停講全名及地址, (係公眾地方時, 真係好煩及冇私隱),最後就話你知放咗假。負責放假都應有人跟架, 佢才非常不願意地窯底, 仲要話: 「你下次打黎,講個名同地址就得架啦。」我答佢:「我打黎時已咁講, 你既同事轉駁咗4次, 我每一次都要重覆。」呢次我都算啦.
今次, 因上星期五醫生中午通知我星期四入院, 而星期一不用到日間醫院,我便需要社康護士幫忙通導管,我知道即卞1300致電她們, 可惜只有留言。等到1600未見回覆,於時再打去, 對方聲稱沒有收過我留言, 比咗個人資料佢, 佢話要搵下我既資料, 才回覆我。過了30分鐘仍未收到任何回覆, 再打去, 已是留言。於是我即時同日間護理病房姑娘反應, 她們即時替我通及換駁頭。
星期六1530收到她們電話, 告訴我她們可以安排,但問我有沒有藥和針筒, 我即時呆了。她知道我第一次,應該不知道要預先準備什麼，但為何她昨天不告訴我?她昨天完全沒有回覆. 她還要說:「病房護士應該要告訴你。」我未收到你們作實星期一會到的電話, 怎會叫病房準備文件。我昨天下午一時致電, 不是應早點回覆我嗎? 如不是我4點打去, 你根本唔會理會。自己失職, ,不好好道歉, 還推責任給病房。這樣不是解決問題, 佢最後提議我,叫我星期一先到日間病房拎藥,再自購針筒,他們下午到家。如果我到病房, 我已可在病房沖喉,根本不用好們到訪。
這樣做,令我這個病人心痛, 社康護士不是幫人嗎?我夾在中間似皮球般踢黎踢去,十分難受。
當初十一月手術做了導管之後, 社康護士不停致電問幾時家訪。奈何當時日日進出醫院同私家醫生, 暫時未有需要,所以決定通知需要時再致電,免得好們每次等我回覆。但其實通知好們取消都不易,因為永遠你會聽到好們沒有MUTE電話, 就大叫邊個做火炭區架, 你會聽到好們大聲講大聲笑, 電話轉駁又轉駁,你不停講全名及地址, (係公眾地方時, 真係好煩及冇私隱),最後就話你知放咗假。負責放假都應有人跟架, 佢才非常不願意地窯底, 仲要話: 「你下次打黎,講個名同地址就得架啦。」我答佢:「我打黎時已咁講, 你既同事轉駁咗4次, 我每一次都要重覆。」呢次我都算啦.
今次, 因上星期五醫生中午通知我星期四入院, 而星期一不用到日間醫院,我便需要社康護士幫忙通導管,我知道即卞1300致電她們, 可惜只有留言。等到1600未見回覆,於時再打去, 對方聲稱沒有收過我留言, 比咗個人資料佢, 佢話要搵下我既資料, 才回覆我。過了30分鐘仍未收到任何回覆, 再打去, 已是留言。於是我即時同日間護理病房姑娘反應, 她們即時替我通及換駁頭。
星期六1530收到她們電話, 告訴我她們可以安排,但問我有沒有藥和針筒, 我即時呆了。她知道我第一次,應該不知道要預先準備什麼，但為何她昨天不告訴我?她昨天完全沒有回覆. 她還要說:「病房護士應該要告訴你。」我未收到你們作實星期一會到的電話, 怎會叫病房準備文件。我昨天下午一時致電, 不是應早點回覆我嗎? 如不是我4點打去, 你根本唔會理會。自己失職, ,不好好道歉, 還推責任給病房。這樣不是解決問題, 佢最後提議我,叫我星期一先到日間病房拎藥,再自購針筒,他們下午到家。如果我到病房, 我已可在病房沖喉,根本不用好們到訪。
這樣做,令我這個病人心痛, 社康護士不是幫人嗎?我夾在中間似皮球般踢黎踢去,十分難受。
2016年3月27日 星期日
副作用出現 Finally the side effect
首先抱歉沒有即時更新,因為今次化療的確比前辛苦, 除了身體的痛苦~作悶,背痛,超攰。最後都要補回。其實最好是可以係醫院打, 但未知醫院有沒有隔離病房, 唔方便帶部電腦去。
最近呢兩次都因肝酵素問題辰多住4天, 兩次療程都花我十天，真辛苦。
第一沒有熱騰騰的食品連暖都不算, 試問怎可以下肚, 尤其是連續打藥5天, 冷水不斷入心, 人都變得冷。
而今次, 還住著一個83歲的婆婆，她患血癌而擴散全身, 第一天見好已想死, 又問醫生有沒有安樂死, 丈夫又有外遇, 只有盡量同佢傾有興趣既野, 好教我煮餸, 姑娘叫佢唔好落地, 佢都堅持自己去洗手間, 還要開著門, 這超越我的底線,這亦使我兩天沒有好好睡過, 仲整到我胃痛。不過真的担心佢, 亦希望幫到佢。但我終於都叫醫生開安眠藥, 要睡一晚才舒緩胃痛。
This time really a hard time as the side effect are more serious than before. I have stomachache, back pain and super tired. On the other hand, as I may not arranged staying in an isolation room, it is not convenient to bring the laptop with me.
The 3rd and 4th treatment, my ALT reading is not ideal and made me stay in hospital for 4 more days. It is really bad as basic food is poor and cold. And I have the treatment injected for 5 continuous days, my body is cold and hot food would definitely better for me.
Also, I have a 83 years old lady stay with me this time. Her situation is not good as it is the final phrase. She is depressed and she always want to die. I talked to her for a few days on any topics she likes. And although the nurse asked her to stay on bed, she insist to go to washroom with the door open. It cross my bottom line and I tolerate it as I do want to protect her and offer help. But this made me fail to sleep well for 2 nights. And my stomach twisted finally. I need to doctor to offer me drug to sleep.
最近呢兩次都因肝酵素問題辰多住4天, 兩次療程都花我十天，真辛苦。
第一沒有熱騰騰的食品連暖都不算, 試問怎可以下肚, 尤其是連續打藥5天, 冷水不斷入心, 人都變得冷。
而今次, 還住著一個83歲的婆婆，她患血癌而擴散全身, 第一天見好已想死, 又問醫生有沒有安樂死, 丈夫又有外遇, 只有盡量同佢傾有興趣既野, 好教我煮餸, 姑娘叫佢唔好落地, 佢都堅持自己去洗手間, 還要開著門, 這超越我的底線,這亦使我兩天沒有好好睡過, 仲整到我胃痛。不過真的担心佢, 亦希望幫到佢。但我終於都叫醫生開安眠藥, 要睡一晚才舒緩胃痛。
This time really a hard time as the side effect are more serious than before. I have stomachache, back pain and super tired. On the other hand, as I may not arranged staying in an isolation room, it is not convenient to bring the laptop with me.
The 3rd and 4th treatment, my ALT reading is not ideal and made me stay in hospital for 4 more days. It is really bad as basic food is poor and cold. And I have the treatment injected for 5 continuous days, my body is cold and hot food would definitely better for me.
Also, I have a 83 years old lady stay with me this time. Her situation is not good as it is the final phrase. She is depressed and she always want to die. I talked to her for a few days on any topics she likes. And although the nurse asked her to stay on bed, she insist to go to washroom with the door open. It cross my bottom line and I tolerate it as I do want to protect her and offer help. But this made me fail to sleep well for 2 nights. And my stomach twisted finally. I need to doctor to offer me drug to sleep.
2016年3月23日 星期三
終於回落了
今日開心終於回落了，回到121， 即刻上病房，可惜今次又到大房，仲要經理有人離世，見到家屬傷心，真的很難過。
我希望今天切順利，快點有隔離房，快點完成第四次化療。
我希望今天切順利，快點有隔離房，快點完成第四次化療。
係第三日，下午突然流鼻水，晚上鼻水倒流，變喉嚨痛，醫生即安排抽鼻水化驗。好彩無事， 為安全才安排我到隔離病房。
ALT finally coming own to 121. The doctor immediately send me to the ward. But this time, I am staying in a room of 6 and experienced someone passed away. I feel sorry for her family.
The third day, suddenly caught a running nose in the afternoon. Then sore throat at night. So the doctor collect my nose 's snivel for testing. Fortunately, they do not find any virus. And I was moved to isolated room.
2016年3月18日 星期五
2016年3月13日 星期日
期待的明日子...不容易
每次當知道要做下一次化療, 心中都有種戰戰兢兢的感覺, 又希望快些進行,又怕有副作用, 好像現在手指頭麻,像針督督下, 連執筆, 打keybroad都會痛。另外又怕獨個留在醫院6天, 每天等著老公來, 老公亦是辛苦工作後趕著到醫院, 或兒子走出走送飯,見到都心痛。
每天望著自己光光頭, 有時都心酸, 點解會是我? 但停了一下, 我會同自己講, 不要消極, 我好彩,光咗頭都唔差呀! 好傻, 但我就是有這份傻.
下星期有可能進第四次,努力, 已行到一半了。
每天望著自己光光頭, 有時都心酸, 點解會是我? 但停了一下, 我會同自己講, 不要消極, 我好彩,光咗頭都唔差呀! 好傻, 但我就是有這份傻.
下星期有可能進第四次,努力, 已行到一半了。
2016年3月1日 星期二
辛苦的副作用1/3-3/3
化療的副作用, 今次見了, 又想嘔,又嘔唔出, 全身痛又瞓唔好, 唔想食, 下巴有瘡仔, 頸有紅敏感,好彩3/3 3 K覆診, 醫生開了強力止嘔藥,食咗2日, 即可回覆正常。
2016年2月23日 星期二
終於第三次化療 23-29/2/2016
第一天,23/2, 因沒有隔離病房, 住在6人大房中, 28床,真是一個恐怖晚上, 對面住著一個胖女青,妹的升鼻軒聲, 又大又急, 根本沒可能入睡,再加上旁邊一位老婦人, 她駁著的儀器, 同鼻軒聲合奏,老婦的家人,不依探病時間規定, 由早上7時至10時,仲有時多到10個人探訪, 姑娘即使勸告, 他們也不理會, 始終是女病房, 那些男人走來走去,又大聲傾計,又唔帶口罩, 真的騷擾其他病人。再旁邊的是因咳出血, 我旁邊是腎有事的, 另一位都是咳的, 當晚, 睡了30分鐘。
第二天, 24/2,因身體既情況, 再加上遲遲未開始化療及未有足夠睡眠, 流淚了, 心沉了。醫生通知雖然陣肝酵素仍高，有138，但因為兩星期內沒有顯著升高，只有調較藥的成份，儘量減低對肝的傷害。當時只想快點開始,快點離開。就在20分鐘後, 通知轉回隔離病房,19床, 心中有點興奮, 原來天父有聆聽我的禱告。
第三天,25/2, ALT124, 血糖17.6,又一個問題, 話要打止嘔針打豆豆, 我堅決反對, 寧口服也不打4日豆豆為一枝止嘔針, 那針係第二次化療時, 一曰枝, 打落喉仔, 點解今次又要打豆?最後改用貼,貼在手臂5天。
第四天, 26/2, 血糖19.4, 人生第一次打胰島素,打肚皮, 但今日, 人超攰, 瞓咗2次, 每次3個鐘, 都好快過呢日。今晚仲搬到一人房。21床
第五、六日,27-28/2,除了攰之外, 仲有作悶作嘔, 好辛苦。終於第七天, 29/2,完了。但作悶的情況沒有離開我,但因為可回家, 也是開心吧!
2016年2月16日 星期二
肝酵素高,住院14-18/2
15/2, ALT 155, 吊水,因為肝酵素高，而未能開始進行第三次化療。話說有肝科醫生下午黎睇，但最終無出現。現只有等。
16/2, ALT126, 停止吊水, 等。
17/2, ALT 124, home leave 回家，期望休息好, 明天可以順利。
18/2, AT 130, 可是仍是高,最終要出院，19/2 照超聲波,下星期一再驗血。祈求天父幫忙。
2016年2月15日 星期一
等床的日子Time for waiting a bed
原本昨天入院, 但因冇床位, 唯有等電話, 真係香港一個奇景。
I am supposed to be admitted to hospital yesterday. But because there is no bed available, I need to wait for the call from the ward. It is really a special scene of Hong Kong.
I am supposed to be admitted to hospital yesterday. But because there is no bed available, I need to wait for the call from the ward. It is really a special scene of Hong Kong.
2016年2月4日 星期四
白血球又低, 血糖仍高,手指麻 White blood Cell count 1.7. Glucose 11.4, finger tip numb
今天0800入院覆診, 白血球低, 又要打3枝升白針...又要辛苦幾日。但手指尖發麻, 令到打唔到字, 用唔到力, 今早已同黃醫生講,原來其中一隻藥的副作用。下一次化療時, 要再調校一下藥的份量。另因類固醇的情況, 引致血糖高。
I go for medical check up at 8 am and find out the white blood cell count is 1.7, Glucose 11.4. Glucose is high because of the Steroid.
But I find out that my finger tips are numb. It makes me feel pain while touching anything. Of course, even typing. I told Dr, Wong about that and he says that they will adjust the portion for the next chemo cos finger numb is one of the side effect.
I go for medical check up at 8 am and find out the white blood cell count is 1.7, Glucose 11.4. Glucose is high because of the Steroid.
But I find out that my finger tips are numb. It makes me feel pain while touching anything. Of course, even typing. I told Dr, Wong about that and he says that they will adjust the portion for the next chemo cos finger numb is one of the side effect.
2016年2月3日 星期三
咳的日子真難過 Coughing Time, Hard Time
星期一覆診, 白血球又回落至1.6, 不過不用打白血球針. 但咳已令人很辛苦, 痰卡在氣管咳唔出, 鼻涕貼緊鼻腔呻唔到, 真辛苦。雖然已於上星期六睇了馬醫生, 食完藥沒有上次的有效。終於今天威爾斯的譚醫生開了傷風敏感藥及化痰藥, 今天已比前幾日舒服了些, 希望咳快停。另外, 開始覺得手指頭有點麻及觸電感覺。
明天又要到威爾斯覆診。祈求天父快把我的咳醫好, 使我身心回復平靜。
I went back to Hospital for check up on Monday. The white blood cell count back to 1.6 but the doctor do not need me to take the filgratm Syringe. My cough made me really tired. The spit are so sticky and cannot come out. Although I visited Dr. Ma last Saturday, the medicine seemed not working at all. But Dr. Tam gave me the medicine on Monday and it worked. I feel better these few days. By the way, I feel a bit paralysis.
Tomorrow, I will go for follow up check at Prince Wales Hospital. I pray for Lord that hope He could heal my cough and make my heart peace and calm.
明天又要到威爾斯覆診。祈求天父快把我的咳醫好, 使我身心回復平靜。
I went back to Hospital for check up on Monday. The white blood cell count back to 1.6 but the doctor do not need me to take the filgratm Syringe. My cough made me really tired. The spit are so sticky and cannot come out. Although I visited Dr. Ma last Saturday, the medicine seemed not working at all. But Dr. Tam gave me the medicine on Monday and it worked. I feel better these few days. By the way, I feel a bit paralysis.
Tomorrow, I will go for follow up check at Prince Wales Hospital. I pray for Lord that hope He could heal my cough and make my heart peace and calm.
2016年1月27日 星期三
第二次化療後第一日覆診 The first medical appointment after the 2nd Injection
今日又到醫院覆診, 主要是看一下白血球情況, 及初打VP16之後的反應,心中等待驗血報告, 一邊祈禱不要再加白血球針。報告出了, 白血球居然有40。於是醫生通知本來剩下兩枝針不用打。但因為了觀察情況, 下星期要再回去2天，目的是確實白血球穩定。今天拆埋導管口的線, 雖然都痛, 但都順利, 拆完, 心口都沒有扯著的感覺。
Today, I need to take the blood test to check my white blood cell count and the situation after the 2nd injection with VP 16 added this time. While waiting for the report, I pray for God that please don't give me any more injection as there are 2 more on my schedule. Finally, the doctor comes with the report and it had 40. So the doctor stop the injection. Thanks God. But in order to keep tight supervision on my situation and white blood cell count after stopping the injection, I need to admit to the hospital for two days next week.
Besides, the stitches of my lumen has removed today. Although a bit pain, but everything goes fine. And I feel comfortable.
2016年1月24日 星期日
Leaving hospital 離開醫院
終於完了, 辛苦了家人, 特別是我老伴, 每天走來走去, 公司事務繁忙。可是今天又是香港最凍的一天, 4度, 唔係呀。不過, 只要回家, 什麼都OK.
Finally finished. I am sorry that my family are disturbed, especially my husband. He is busy in office and need to rush to hospital to buy me dinner.
Today, I can go back home. But it is also the coldest in Hong Kong, 4 degree. Now, I don't want anything but go back home.
Finally finished. I am sorry that my family are disturbed, especially my husband. He is busy in office and need to rush to hospital to buy me dinner.
Today, I can go back home. But it is also the coldest in Hong Kong, 4 degree. Now, I don't want anything but go back home.
2016年1月22日 星期五
新房客 New Room mate
當印印走後, 換了另一個太太, 佢早2日還在ICU, 她雖證實不是癌症,但口腔牙肉全發炎, 她已於當晚入住時, 沒有戴口罩, 我為了保護自己, 已戴,但整個晚上, 不知是印印,定新太太令我喉嚨乾, 又辛苦。越來越唔明, 醫院的守則, 我是來落藥, 一向情況好好, 為何不可以給我安心落藥走, 而要讓我冒險。
A new lady comes but she was at the ICU 2 days ago. She is confirmed not having cancer but her mouth had serious inflammation with sores. However, she did not wear mask the whole night. I had to protect myself so I have mine. I cannot sleep well that night because it is really uncomfortable to wear mask to sleep. I have no idea why the hospital handle about case like this. They prefer to put me under that threat. Is it too risky for me?
A new lady comes but she was at the ICU 2 days ago. She is confirmed not having cancer but her mouth had serious inflammation with sores. However, she did not wear mask the whole night. I had to protect myself so I have mine. I cannot sleep well that night because it is really uncomfortable to wear mask to sleep. I have no idea why the hospital handle about case like this. They prefer to put me under that threat. Is it too risky for me?
2016年1月20日 星期三
第二至四晚威爾斯 The 2nd - 4th Night
第一晚已不好過, 要抽住藥架, 又要抆電製, 又要插電製, 個廁所感應器又過敏, 未坐低已沖水。瞓得好差。
但旁邊的印印, 即使姑娘不準佢落床, 佢照落, 佢每次去廁所, 令我壓力加重, 又怕佢有事, 又怕佢有事時整到我。
但又有事發生, 聽到印印傷風同咳, 但每朝醫生問佢, 佢又唔講。終於有天, 佢發燒, 但醫院即時沒有調走印印。於是我忍不住同姑娘講, 佢有咳, 有痰, 有傷風。姑娘即時問佢鼻涕顏色, 我聽到話黃色, 即時心實一實, 唔係呀, 我而家咁弱, 旁邊有事仲唔轉走佢 ? 最後, 佢都留多了一晚, 直至報告證明佢有副流感,才調到獨立房。姑娘入黎仲要同我講, 你都要帶口罩保護自己, 唔係呀, 醫院唔係要安排好的嗎? 只要發燒, 都要隔離一下先啦。今天好朋友探我, 又帶了其他朋友的書、頭巾給我。
It is not an easy night. I need to unplug the electricity supply and plug it back when I go to toilet. The sensor of the flush is really annoying as it is so sensitive.The Indonesia room mate does not listen to the nurse. She keeps getting off her bed and that makes me worry. I don't know how to handle her if she faint again and I am worrying that if she fells, she may pulls off my stuff.
Then, something happened. She had fever. But she never tells her doctor about her running nose and cough. So I tell the nurse and she tells the nurse that her spit is yellow. I know that she is not ok. But they did not move her out under the report proved that she had flu. I am wondering why they do not move her out once she had fever. It is really dangerous that they also had to protect me.I have a visitor today. She brings also the books and the scarf from my friends.
2016年1月19日 星期二
威爾斯-驚險的第一天 The first day @PWH
到了醫院，驚喜的是住隔離2人病房19床，有獨立廁所。但失望的是標靶要等到黃昏6點先開始，0800至落藥只是等藥房配藥，另外化療藥直至9點才開始，4天的藥，好大可能要住多一晚，十萬個不願意。
不只這個小風波，還有的是居然還要我打豆，有兩條喉都唔夠，仲要打豆。本身就係因為打唔到才要裝這條喉，我堅決反對之下，最後冇打。當醫生都接納唔打，居然十分鐘後打豆員入黎話要打三個豆，一粒都唔打，打三個，真係有病。最突然的是房沖完涼，出黎時同我講佢暈，我立即㩒姑娘鐘，一個姑娘入黎，我同佢講話同房沖完涼覺暈，姑娘接扶佢，就係個分鐘，同房暈倒，姑娘即叫門口姐姐撐扶，之後再有2個護士入黎，4個合力抬佢上床。但她整個人沒有力，似失去知覺，情況都幾恐怖，但好彩佢一陣有返知覺。
但係最後，要黃昏6時後才開始打標靶藥, 晚上9時才開始化療, 亦因為延遲, 無奈地要住多一晚醫院。
Arrive the hospital at 0800. It js a surprise that I am staying in a room of 2 with independent washroom and shower.
However, I need to wait until 6pm to start my injection.
Secondly, they need to set drip on my hand as they said my two lumen is not enough to use. How ridiculous, if the person does not have lumen, they need to have 3 needles on his hand? I insist not to have any drip on my hand. More stupid, they send someone to ask me have 3 drips on my hand.
Lastly, one thing shocked me. My roommate feels dizzy after she takes a bath. I press the nurse alarm and a nurse comes in. I tell her that my roommate feel dizzy. She holds her arm ad wants to bring her back to her ed. But suddenly my roommate loses her consciousness. Then the nurse call the workman outside the ward and help. Then two more nurses come and put her on her bad. After a while, she regain her consciousness and fine. The atmosphere is so tense.
However, I need to wait until 6pm for the first injection. And because of the delay injection, I have to accept staying one more night.
不只這個小風波，還有的是居然還要我打豆，有兩條喉都唔夠，仲要打豆。本身就係因為打唔到才要裝這條喉，我堅決反對之下，最後冇打。當醫生都接納唔打，居然十分鐘後打豆員入黎話要打三個豆，一粒都唔打，打三個，真係有病。最突然的是房沖完涼，出黎時同我講佢暈，我立即㩒姑娘鐘，一個姑娘入黎，我同佢講話同房沖完涼覺暈，姑娘接扶佢，就係個分鐘，同房暈倒，姑娘即叫門口姐姐撐扶，之後再有2個護士入黎，4個合力抬佢上床。但她整個人沒有力，似失去知覺，情況都幾恐怖，但好彩佢一陣有返知覺。
但係最後，要黃昏6時後才開始打標靶藥, 晚上9時才開始化療, 亦因為延遲, 無奈地要住多一晚醫院。
Arrive the hospital at 0800. It js a surprise that I am staying in a room of 2 with independent washroom and shower.
However, I need to wait until 6pm to start my injection.
Secondly, they need to set drip on my hand as they said my two lumen is not enough to use. How ridiculous, if the person does not have lumen, they need to have 3 needles on his hand? I insist not to have any drip on my hand. More stupid, they send someone to ask me have 3 drips on my hand.
Lastly, one thing shocked me. My roommate feels dizzy after she takes a bath. I press the nurse alarm and a nurse comes in. I tell her that my roommate feel dizzy. She holds her arm ad wants to bring her back to her ed. But suddenly my roommate loses her consciousness. Then the nurse call the workman outside the ward and help. Then two more nurses come and put her on her bad. After a while, she regain her consciousness and fine. The atmosphere is so tense.However, I need to wait until 6pm for the first injection. And because of the delay injection, I have to accept staying one more night.
2016年1月18日 星期一
白血球達標+剃頭儀式 white blood cell count pass + head shaving
今日0800返醫院驗血, 13達標, 醫生即要求下午入院,但我冇任何準備, 明早0745準時再入院。
明天即開始第二次化療。
下午回家途中, 因碰髮甩得太厲害, 係毛巾,枕頭,衫都是,所以決定剃光頭, 就係最近QB HOUSE攪掂。
現只求明天一切順利。
Today, arrive the hospital at 0800. It is glad to hear that my white blood cell count is 13 and reach the standard requirement for the 2nd injection. The doctor ask me to stay today but I reject as I do not have any preparation. So I will go to hospital tomorrow at 745.
On the way home, I went to QB House to shave my head as my hair is running off my head and mess up every where, towers, pillow, shirts.
I pray for my Lord and hope everything going smooth.
明天即開始第二次化療。
下午回家途中, 因碰髮甩得太厲害, 係毛巾,枕頭,衫都是,所以決定剃光頭, 就係最近QB HOUSE攪掂。
現只求明天一切順利。
Today, arrive the hospital at 0800. It is glad to hear that my white blood cell count is 13 and reach the standard requirement for the 2nd injection. The doctor ask me to stay today but I reject as I do not have any preparation. So I will go to hospital tomorrow at 745.
On the way home, I went to QB House to shave my head as my hair is running off my head and mess up every where, towers, pillow, shirts.
I pray for my Lord and hope everything going smooth.
2016年1月17日 星期日
《暗黑破壞神III》周末 Diablo III Weekend
今個周末, 因為精神好, 又回覆胃口, 加上《暗黑破壞神III》出新野, 一家四口決定打機, 非常開心。
I am in good condition and appetite this weekend. And Diablo III has launched a new patch. So our family decided to have a wonderful family time. We are having fun.
I am in good condition and appetite this weekend. And Diablo III has launched a new patch. So our family decided to have a wonderful family time. We are having fun.
2016年1月16日 星期六
終於有得瞓 Sleep Finally
昨晚終於一覺瞓天光, 但瞓得太多, 反而有點頭痛. 下午再食藥, 都要瞓2個鐘, 一醒已夠鐘煮飯. 但冇咳咁辛苦, 已非常感恩.
I finally slept the whole night. But sleeping too much makes me headache. After taking the afternoon medicine, I sleep for another 2 hours. I wake up at 6 and start cooking. However, thanks God for making me less cough and I feel much better.
I finally slept the whole night. But sleeping too much makes me headache. After taking the afternoon medicine, I sleep for another 2 hours. I wake up at 6 and start cooking. However, thanks God for making me less cough and I feel much better.
2016年1月15日 星期五
恐怖的晚上 A terrible night
昨晚只睡2小時, 還要坐著才能睡, 所以決定今早去馬醫生度睇一下, 老公見我咳成咁, 即使白血球低, 都要去睇。細仔陪我到診所, 姑娘見到我個樣都問侯我, 仲叫我唔好担心。馬醫生好細心問我除了咳還有什麼, 一切各樣都解釋給我聽。即使我轉到威爾斯睇,醫生同姑娘都會問一下我的情況, 每次離開診所, 他們都會同你講, 加油呀, Vera. 真窩心, 這樣有醫德的醫生, 加上細心和關心的姑娘, 真是我的福氣。
食了一次藥, 咳明顯少了, 下午睡了2小時, 非常舒服。希望今晚可以有個甜睡。
Last night, I could only sleep for 2 hours in the sitting posture. So I decide to see Dr. Ma. Although I am now with a low White Blood Cell count, my husband agree as he finds me cough seriously. My younger son accompany me to the clinic. The nurse see me and find my tired face. They tell me not to worry and see what Dr. Ma can help. Dr Ma asks me all the details and explain all my questions. He is really a good doctor. Although I change to Prince Wales Hospital for the following treatment, Dr. Ma and his nurses will keep contact me for my status and giving advice for any questions. Every time when I leave the clinic, they will encourage me "add oil, Vera". How sweet and warm they are.
After taking the medicine, cough obviously better. I can sleep well for 2 hours this afternoon. And hopefully I can have a sweet dream tonight.
食了一次藥, 咳明顯少了, 下午睡了2小時, 非常舒服。希望今晚可以有個甜睡。
Last night, I could only sleep for 2 hours in the sitting posture. So I decide to see Dr. Ma. Although I am now with a low White Blood Cell count, my husband agree as he finds me cough seriously. My younger son accompany me to the clinic. The nurse see me and find my tired face. They tell me not to worry and see what Dr. Ma can help. Dr Ma asks me all the details and explain all my questions. He is really a good doctor. Although I change to Prince Wales Hospital for the following treatment, Dr. Ma and his nurses will keep contact me for my status and giving advice for any questions. Every time when I leave the clinic, they will encourage me "add oil, Vera". How sweet and warm they are.
After taking the medicine, cough obviously better. I can sleep well for 2 hours this afternoon. And hopefully I can have a sweet dream tonight.
2016年1月14日 星期四
第三針 The Third Injection
昨天打了第三針, 真係徹底崩潰, 連Blog都寫唔到。咳到嘔,夜晚瞓唔到, 瞓得2個鐘, 人已經好攰, 周身痛, 仲要瞓唔到, 真辛苦。最唔開心, 開始甩頭髮, 仲好多個隻。
I collapsed finally after the third injection. I even cannot write blog. I had a very bad cough and cannot sleep at night. I sleep for two hours only. While feeling exhausted and pain all through the body, fail to sleep is really a punishment. By the way, I feel sad because my hair come off.
I collapsed finally after the third injection. I even cannot write blog. I had a very bad cough and cannot sleep at night. I sleep for two hours only. While feeling exhausted and pain all through the body, fail to sleep is really a punishment. By the way, I feel sad because my hair come off.
2016年1月12日 星期二
白血球針的厲害 The effect of the Filgrastm(Nivestim)Prefilled Syringe
昨天第一針白血球,晚上以 為昨天係醫院先覺得攰, 後來, 右肩肌肉也酸起來,搽了梁華, 便睡著了。但今天整個人都好攰, 坐都要挨著, 整個人的肌肉都是酸軟的, 胃口有不太好, 有些作悶.估唔到係呢枝針玩起我。剛晚飯前打完第二枝，真的軟化了，整個人由頭到腳都痛，冇晒精神，仲要咳。希望明天第三針後，不會再差。並日後回復精神同胃口。
After the injection yesterday, I was tired last night. And the muscle was so painful. But after putting some ointment, I could sleep at last. But today, terribly tired.I even do not want to sit on the sofa. I do not want to eat much and feeling frustrated. I underestimated this syringe. I have the 2nd injection before dinner. It is really terrible. The pain is from head to toe. And the coughing makes me feeling bad. Hope it would worser after the 3rd injection. Pray or the worse situation would disappear the day after.
After the injection yesterday, I was tired last night. And the muscle was so painful. But after putting some ointment, I could sleep at last. But today, terribly tired.I even do not want to sit on the sofa. I do not want to eat much and feeling frustrated. I underestimated this syringe. I have the 2nd injection before dinner. It is really terrible. The pain is from head to toe. And the coughing makes me feeling bad. Hope it would worser after the 3rd injection. Pray or the worse situation would disappear the day after.
第一個拆線日 First Stitch take out Day
今天0800到醫院,除了拆第一個針口的線外, 還驗白血球等等其仔指數,如果太低,要打白血球針。拆線完全唔痛,而指數除了白血球得1.3, 還有鈣低, 得1.99, 尿酸0.16,還可以。於是要打白血球針, 仲要自助式打3日和食鈣片. 醫生話如果下星期一再驗, 白血球回升, 冇咳, 便安排幾日後打第二次化療, 但要求留院4天, 藥拆開4天來打。又要住院了。
Today, we arrive the ward at 8am. Besides taking out the stitches, blood test is need and see whether I need the white blood cell injection. Finally, the stitches are taken without pain. The reading for white blood cell is 1.3, Calcium 1.99(below standard), urine acid 0.16 (pass). So I need the injection for consecutively 3 days (self served) and have calcium pills. Doctor says I need to back on next Monday and have the blood test. If the white blood cell reading is better and I stop coughing, I will admit to hospital a few days later. He advises me to stay in the hospital for 4 days. He says the treatment will be injected in 4 days. Omg, I need to stay in the hospital again.
為予額外補充, 買了一箱營養奶, 好彩有cappuccino 味.
Today, we arrive the ward at 8am. Besides taking out the stitches, blood test is need and see whether I need the white blood cell injection. Finally, the stitches are taken without pain. The reading for white blood cell is 1.3, Calcium 1.99(below standard), urine acid 0.16 (pass). So I need the injection for consecutively 3 days (self served) and have calcium pills. Doctor says I need to back on next Monday and have the blood test. If the white blood cell reading is better and I stop coughing, I will admit to hospital a few days later. He advises me to stay in the hospital for 4 days. He says the treatment will be injected in 4 days. Omg, I need to stay in the hospital again.
為予額外補充, 買了一箱營養奶, 好彩有cappuccino 味.
2016年1月11日 星期一
最弱的開始 The weakest day starts
根據醫生的叮囑, 今天是打針後開始最弱的一天, 白血球指數應該開始下降。今日真的開始有鼻水, 有點咳, 人比之前更攰, 全身都有點酸軟,所以今天特別小心, 一切食物都要煮透。
According to the doctor advice, today is the first day that the the decrease of the white blood cell counting. This morning, a little running nose, coughing, much more tired and feeling a bit sore of my body muscle. So today, food cooked thoroughly and prevent any infection.
午餐 : 炒油麵
晚餐 : 釀豆卜豆腐紹菜煲+揚州炒飯
Lunch : Fried noodles
Dinner : bean curd with pork filling, tofu and vegetable + fried rice
According to the doctor advice, today is the first day that the the decrease of the white blood cell counting. This morning, a little running nose, coughing, much more tired and feeling a bit sore of my body muscle. So today, food cooked thoroughly and prevent any infection.
午餐 : 炒油麵
晚餐 : 釀豆卜豆腐紹菜煲+揚州炒飯
Lunch : Fried noodles
Dinner : bean curd with pork filling, tofu and vegetable + fried rice
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